Monday, August 9, 2010

i get personal with the Run for the Cure


This is the text from my page at Run for the Cure site;

Thanks for visiting my personal page.

I was diagnosed with very agressive breast cancer in January 2006. In November of that year, I learned that it had spread to my liver.

My oncologist told me that the were "more tumours than they could count" and when I asked how long I could expect to live, he reluctantly answered, "Years. Not decades."

Fast forward to June 2007, when after several rocky months of treatments, I started feeling much better. Then, on June 30th 2007, a scan confirmed what my body had been telling me - there was no longer any sign of cancer in my body!

I have been in remission for three years. I'll remain in treatment (chemotherapy and Herceptin every four weeks) for the forseeable future, though. There are so few women in my postion that no one can reliably say what will happen if I stop. But I've noticed that my family and are planning ahead and casually making reference to events that will take place years in the future and assuming that I will be there.

I am running on October 3rd so that more women will be granted a future they thought had been stolen from them.

I'm running in the hope that some day soon women like me can walk away from treatment with confidence that the cancer is behind them.

I'm running so that my nieces and other young girls need never worry about breast cancer at all.

Can you support me (please)?

I have added a permanent link to the blog (top right hand side) that you can click on any time, if you want to make a donation.

(Our team, No Pink for Profit, now has seventeen eighteen members. Three Four other women have committed to join us. There is still room for more though - you can run or walk at your own pace. You can pay the entry fee or decide to fundraise. It's completely up to you. All women are welcome).

Sunday, August 8, 2010

43 things (part two)


15. My family gave me the Regretsy book, and two cds (Hannah Georgas and David Francey) for my birthday. All were excellent choices.

16. I also had a birthday pedicure. I chose the least conservative colour, a sparkly blue-green. I have since lost a lot of time staring at my toes and smiling.

17. My right foot is a half-size bigger than my left foot.

18. The other names my parents had on the short list for me were Beverly and Andrea. I would have liked to be an Andrea.

19. Sometimes people tell me I am intimidating. I don't understand it at all.

20. I read Pride and Prejudice for the first time when I was 8. I came across it while browsing the adult section (as opposed to the kids' section. Hawkesbury's library did not have those kinds of materials!) of my public library. I had already read pretty much all the books that appealed to me in the kids' section.

21. I read The Grapes of Wrath for a book report when I was 12. I think it made some of my classmates hate me.

The International Teachings on What Real Health System Alignment Is All About

There is nothing like being a speaker at an international conference to make the Disease Management Care Blog rethink all its U.S. based assumptions, biases, and wishes. That kind of baggage can end up cluttering the intellect like the castaways in the DMCB's crowded basement.

During its long round-trip flights, the DMCB had a chance to ponder the mysteries of health insurance, savings, revenue, cost, expense, charges, claims and quality. Maybe it was being 34,000 feet closer to the stars, or perhaps it was being bombarded by more intergalactic tachyons or maybe it was the flight attendants' generosity with the French white Bordeaux, but by the time the DMCB had completed its migrations, many of its notions had undergone a reappraisal.

That's a good thing, because fewer assumptions means more brain space. That, in turn, enabled the DMCB to learn that, while the United States spends more healthcare treasure per capita than any other country in the world, many other countries' year-to-year budget increases or cost trends are distressingly similar to our own. What's more, their taxpayers and policymakers "on the ground" - despite favorable discernible inter-country differences in quality - are not necessarily convinced their local health care systems are giving them their money's worth. Little surprise, then, in foreign interest in "disease management" (examples here, here, here and here). Ditto, by the way, for the chronic care model (CCM).

Yet "interest" isn't the same as acceptance. What will it take for disease management (DM) and the CCM to gain international traction in a worldwide environment of rising costs and consumer discontent? The DMCB simplistically thinks it comes down to the macro-economic alignment of three key stakeholders:

Insurers (including payers, government and ultimately taxpayers): it's hard to underestimate their worry over the unsustainable trajectory in health care costs. When it comes to DM, they'll need to be convinced that there are savings. Absent savings, they need to be convinced that DM is ultimately cost neutral. Absent cost neutrality, the notion of cutting current costs or future fee schedules elsewhere is possible but politically unpalatable and time consuming.

Healthcare Providers (including DM companies): if an insurer will cover DM and CCM, the providers will be happy to offer the service, assuming the revenue provides sufficient margin over costs. Several providers in the field may lead to some price competition.

Consumers: if DM and CCM translates into perceptible betterment, they'll want more.

This is hardly big news, but there are some lessons:

1) the U.S. is not alone when it comes to reconciling cost and quality.

2) disease management has a role to play in reconciling cost and quality beyond our borders.

3) "aligning incentives" is not necessarily about using provider payment incentives to trump value over volume. Overseas, there is a more fundamental interest in aligning payers, the providers and the consumer.

4) any company that succeeds in aligning the incentives will win. It should be no wonder that American disease management companies are active overseas. It they serve the insurers, the providers and the patients, they'll win.

Friday, August 6, 2010

no pink for profit at the run for the cure

We interrupt the regularly scheduled programming to bring you this open letter:

Dear Ottawa area women friends and family,

Last week end, my friend CR and I were talking about doing the Run for the Cure on October 3rd. I suggested forming a team named something along the lines of "We hate pink crap but we hate breast cancer even more."

Elegant slogans were never my forte.

C. reminded me that the brilliant KJ had already come up with "No Pink for Profit." I think this is perfect and I have registered a team with that name. Want to join me? We need ten women (anyone can participate but I'd really like to form a women's team) and you can run it or walk it, raise money or not.

All it would involve on your part would be registering, raising money if you want (or just paying the registration fee) meeting at the start of the run to get your team t-shirt and then either walking or runnning 5k at your pace. Then, as many of us who want to could meet up at the end and go out for a yummy breakfast.

I have a bit of an agenda here, other than the exercise, friendship and a good cause. How cool would it be to have a really large group of women wearing "No Pink for Profit" on their Run for the Cure t-shirts? And if the name is rejected by run organizers (which I truly hope doesn't happen), we have another opportunity for education.

So, what say you? Please feel free to forward this message to any women you know. I want to cast as wide a net as possible.

Laurie

p.s.: You can sign up here.

Update: Less than 24 hours after writing this, there are 12 13 of us signed up and two more who have said that they will. I am over the moon - so moved and happy. There's no limit on team size, so please continue to spread the word. Any woman who wants to join us is welcome.

Thursday, August 5, 2010

Read This Book. It Will Make You Smarter

The Disease Management Care Blog is pleased to announce the August 16 publication of the book Population Health: Creating a Culture of Wellness. You can order your copy here.

As the overview states, this authoritative text:

"....provides a population-based approach to education applicable to professionals in disease management, chronic care management, and politics in addition to students studying public health, health policy, quality and patient safety, health care administration, medicine, nursing, pharmacy, social work and other related clinical professions."

The DMCB agrees. This is an important resource on the topic of care management because it has the latest information on disease and case management, prevention and wellness. If you like checking in with the DMCB, you'll find this book to be an excellent resource. It will also be a handsome addition to your office bookshelf and provoke the envy of co-workers, the admiration of your boss and the advancement of your career.

How does the DMCB know this, you ask? It helped write some of the book.

43 things (part one)



Yesterday was my birthday. I decided that it would be fun to write a post with 43 things that I had never written about on the blog. This proved to be quite a challenge, especially since I don't seem to have a lot of writing time these days (and it was my birthday, after all).



I've decided to post the list in stages, since I stil only have less than 20 and a post with 43 things would be way too long to be interesting (and I'm hoping this is interesting).



So here goes:



1. I am 43 years old (hence the 43 things).



2. I've decided that I want to lose 44lbs before my 44th birthday.



3. My most memorable birthday presents were my little black dog (who was a Mother's Day, birthday and Christmas present all rolled into one), my trip to BlogHer in '07 and the red bike with the banana seat that I got for my seventh birthday.



4. I wear much less make-up now than I did when I was fifteen.



5. One year, in university, I spent several November days dressed up as an elf and handed out candy canes along with leaflets asking people not to buy “war toys.”



6. I'm married but I have never celebrated my wedding anniversary. I have celebrated the anniversary of the beginning of our relationship. In March, it will be 20 years (we've been married for 14).



7. We were married by a secular Jewish Humanist officiant. She stipulated that there would be no mention of God and no sexism in the ceremony, which suited us perfectly.



8. I am in awe of every single one of my brothers-in-law and sisters-in-law on both sides of my family. I have eight in total and I really like hanging out with each one (and my sister is pretty great, too).



9. I got my first dog when I was 25 years old. I planned and researched for a year before settling on a golden retriever. The other breeds on my short list were pug and Shetland sheep dog.



10. I named her Emma after Emma Goldman, although her papers said Golden Breeze Lady Emma Delight. She was neither an anarchist nor an aristocrat by nature.



11. I lost Emma to old age and Jasper to cancer. Losing Jasper was harder, as it felt so unexpected and brutal. My grief for him is still very raw and I miss him more than I can say (I know that I've written about this but I need to include it here).



12. I have absolutely no sense of direction, a trait I have passed on to my firstborn.



13. I can't curl my tongue, although both kids and my spouse can. This makes me feel oddly left out.



14. I can still remember the first phone number I ever learned but I sometimes forget my cell phone number.



Wednesday, August 4, 2010

An Air Travel Themed Health Wonk Review: Frequent Flyer Miles For Your Brain

Welcome to this airline travel version of the Health Wonk Review. Why such a theme, you ask? Well, it is my blog, but, to be honest, the Disease Management Care Blog has been preoccupied lately by achieving an "Up In The Air-esque" Premier Executive frequent flyer status. That can make all the difference between no leg room and a few precious inches, the back vs. the front of the plane and no hope vs. some hope of an upgrade.

This wonky review is no different: thanks to the contribution of numerous bloggers, readers will get miles of insight into the latest developments in health care policy.

Quick introduction: the Disease Management Care Blog writes about disease management, the medical home, case management, wellness, managed care, health insurance and federal legislation, with an opinionated emphasis on science and published evidence. Glad you came to visit and please, stop by again.

So, let's head for the airport in this merry wonky travel adventure!

First off, isn't air travel such a hassle? Between the expense, the lines, the scanners, the waits, the cancellations, don't you just wish you could find a cheaper alternative? While airlines may start making seats optional, a more friendly health care alternative, says David Williams, is increasingly becoming available. Called "MinuteClinics," these care centers seem to offer comparable medical expertise, shorter wait times and lower prices to an American public disenchanted with technology. Maybe the next option is to dispense with pilots.

The DMCB wonders about those metal detectors and the security check point. Is its face going through facial recognition? Has its hard drive been imaged? Has it been the subject of unflattering pics that are au naturel? The same level of intrusiveness is the topic of of the InsureBlog, who gave healthcare.gov a test drive and found it to be disturbingly nosey and, compared to the web sites of private insurance agents, quite user unfriendly.

While you're waiting in line to board, did you ever look at your ticket? No, the DMCB means really scrutinize it. All those numbers and other hieroglyphs are pregnant with meaning and, with time and effort, they can probably be deciphered. Over at the HealthAffairs Blog, Timothy Jost helps us interpret the ticket to coverage of pre-existing conditions in the Affordable Care Act. Now you know why that ticket may not quite be everything you thought it was.

Getting past the ticket agent to the jet bridge, it'd be easy to marvel at the confluence of technology, systems, capital, and human resources that will get you from Point A to Point B. Yet, the airlines keep saying they're losing money, that they need to merge, that we should trust that they won't act like monopolies and that they're playing nice with government. Beware, says DrRich of the Covert Rationing Blog, the same dynamic may be afoot in the health insurance industry, which has put the Obama Administration exactly where they want us. You can read all about it here.

Stepping on board, isn't amazing how the flight attendants can be so solicitous, smiling, friendly, polite and helpful? Well... the are most of the time and it's probably because they're trained to be that way. Why not use that approach in our nation's physician-training programs, asks Chris Langston over at the John Hartford Foundation Blog. Two weeks of an eldercare clerkship seemed to have a modest impact on medical students' attitudes toward geriatric patients: they seemed to not dislike them as much. Keep that in mind the next time you ask for a pillow, and the flight attendant grits her teeth, gives you a fake smile and murmurs "certainly."

Gotta get that overhead bin! Airlines seem to be charging for checked baggage, which has the side effect of making people scramble for that prized space for their carry-ons close to their seats. Yet, the DMCB wonders if there are fewer bins. The appearance versus the reality is also a topic of discussion over at the nothwithstandingblog, who thinks that there may be something to the notion that low fee Medicaid/S-CHIP fee schedules may have something to do with a possible shortage of pediatric specialists.

Settling into your seat, you may want to take a glance at that huge turbine engine and wonder if it's gotten sufficient maintenance. Good point, says Gary Anderberg over at Workers Comp Insider. Getting passengers safely to their destination isn't a matter of return on investment; getting employees to be healthier isn't either. It's a more fundamental question of risk management. The DMCB agrees and grimly buckles its seat belt.

While we're at it, wouldn't it be cool if air travel didn't have to depend on costly and dirty jet fuel? Travelers are probably vaguely aware of new technologies, but, alas, they are not even close to being ready for prime time. A similarly sorry state of affairs exists for Accountable Care Organizations (ACOs) says Brad Flansbaum. Sure, the concept may look promising, but there are a host of unanswered questions that need to be answered before we'll really know if it works. Now why isn't the chair recliner working?

Uh oh. Looks like the person on the next seat is already laying claim to the arm rest. Such a small thing, but there is nothing like hours of elbow dueling to make the flight interesting. Health Beat's Maggie Mahar gives the Cato Institute a hard progressive nudge when she points out that the original mandate was the Militia Acts of 1792, which required citizens to provide themselves with a musket. Even those wacky Tea Baggers may agree with that, but the DMCB likes this quote provided by Cato: "The left may ridicule the suits that have been brought against ObamaCare by more than 20 states and others, but in doing so they ridicule nothing less than the American heritage of limited constitutional government. If ObamaCare revives that heritage, it will all have been worth it."

Double uh oh. It appears the person on the next seat is a chatty cheery optimist also. The DMCB prefers to be left alone in silence with its biased notions, but that's not going to stop the bright Austin Frakt of the Incidental Economist Blog from pointing out that the individual mandate is working in Massachusetts because it is reducing adverse selection, only minimally increasing premiums, are aligned with the penalties which is good news for the rest of the country because there will be little gaming even though that may not work in other states its OK because there are tweaks possible. The DMCB is resisting putting in the ear phones because the guy may be right - as usual.

Are the earphones working? The DMCB likes that because it thinks the sound quality and the number and variety of in-flight tunes have increased lately. That's the ticket, says John Goodman over at the Health Policy Blog. He argues there's a direct inverse correlation between government/third party meddling and entrepreneurial health care innovation. Hm, says DMCB, it wonders if the lack of FAA regulations are responsible for that awful Lady Gaga tune. If so, it's going to hire a lobbyist: everyone else is, it seems.

Among the worse outcomes for the DMCB is getting stuck on the tarmac in a long aluminum tube and no idea when "wheels up" will happen. There are many reasons for delays: weather, flight patterns, safety considerations, regulations etc., but that doesn't mean clueless passengers haven't fantasized about going into the cockpit, grabbing the controls and taking off anyway. Deciding to use the emergency room has the same dysfunctional calculus for persons that are unable to understand what their symptoms mean, whether there are any other available providers and if waiting is an option. The problem, says Brad Wright of Wright on Health, is that there are emerging data showing that having insurance doesn't lessen reliance on emergency rooms, no more than having a ticket guarantees knowing what a Ground Stop means.

That doesn't mean the DMCB doesn't marvel when a multi-ton contraption filled with people finally does take off or that it doesn't feel some anxiety when the wings visibly wobble during flight. The cognitive dissonance that comes with being simultaneously safe and being tens of thousands feet in the air is not unlike the parallel realities of the States' implementing elements of the Affordable Care Act, says Joanne Kenen of the NewHealthDialogBlog. Sure, many are in active opposition but that doesn't mean that they aren't also going to comply, because that's what States ultimately do. The DMCB agrees, but sometime prefers to deal with the peculiar unrealities of flying with beverages that come in those small weenie bottle like containers. Like at least two of them.

Where is that beverage cart? As it slowly makes it way down the aisle, the DMCB is reminded of nurses using a drug cart and passing meds as they slowly make their way from patient room to patient room. While they're at it, there are other countless patient concerns, making it a full time job and a half. No wonder by the time they get to the DMCB 's seat they can be grumpy about that request for a second bag of pretzels. Well, in hospitals, they can be outright angry at the way these institutions expect them to do more and more for less and less. Case in point, courtesy of Gary Schwitzer's HealthNewsReview Blog is a narrowly averted nurse strike in Minnesota.

Maybe, thinks the DMCB, flight attendant to passenger staffing ratios need to be more intelligent. Factors such as age, prior flying experience and customer expectations could be used to flex on board staffing. After all, the idea has merit in healthcare, says the folks over at the INQRI Blog. Using an "acuity index" saves lives in neonatal intensive care units. Using a "don't you realize how important I think I am?" quotient on the DMCB may save it some inconvenience. Not.

Of course, knowing how much the executives earn at the top of the managerial pyramid isn't going to help make anyone feel better. Adding to the nurses' - and the passenger-patients' - dismay is this compelling review of the twisted logic and dysfunctional market dynamics that permit not-for profit hospital executives to be paid shocking amounts of money. Health Care Renewal points out that institutional size makes little difference, it seems, to the routine compensation that runs into the hundreds of thousands of dollars.

Speaking of dysfunction, Anthony Wright of the Health Access Blog thinks California's Anthem Blue Cross subscribers deserve better. Getting from here to there is not just a function of replacing the CEO, says he. With the exit of Leslie Margolis, hiring a new CEO should really be a first step the company's waking up to a new business model dedicated to serving its customers by competing on cost and quality.

That wouldn't be so bad if the expense resulted in a better, safer and ultimately cheaper flying experience. "Comparative effectiveness research" is supposed to accomplish much of the same thing, but beware says Rich Elmore, over at Healthcare Technology News. It can be overly scientific, dry and inconclusive. Like those $9 meals in a box. Unlike travelers, will taxpayers get what they pay for in CER? Stay tuned!

During the seat backs up, trays put away, stuff-under-the-seat or else landing, the DMCB is reminded that getting off the plane doesn't necessarily mean that it's arrived. There's transportation to the hotel for example. The same is true when it comes leaving acute care and having to deal with long term care insurance. Some passengers like to wing it when they disembark for nursing homes, but Jay of the Long Term Colorado Insider points out that you should plan for the $70,000 yearly cost as early as possible. Like before you even get on the plane.

Once on the ground, it's comforting top know that we have customer surveys, eh? The DMCB gets great satisfaction in filling them out after it flies, so take that and that. Hit "send" and..... what? The same "tastes great but isn't filling" let-down may be in store for patients that fill out those hospital quality surveys, points out the Healthcare Economist Blog. The data may be prone to manipulation because those collecting the information also happen to be responsible for assembling it, summarizing the results and interpreting it.

And don't forget that other statistical manipulation may be called for. The DMCB frequently flies through Chicago, and its learned that getting out on time may be a function of weather, not the airline. You can get a sense of just how important the methodology can be in this discussion by Avik Roy of whether an Annals of Surgery article on Medicaid vs. uninsurred mortality rates is telling the truth or whether there is a bias.

So, the DMCB would be the first to welcome you to the conclusion of the HWR. You may now turn on your cell phone, but it asks that you remain seated until your PC has pulled up to the gate and you've gotten some more work done.

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