not really the end

Did you know that the world is going to end on May 21st, 2011? I saw a guy on a street corner today with a sign that said just that. And then I saw a big-ass caravan with the same message.

Contemplation of our impending collective doom helps to put yesterday's election into perspective. It doesn't matter if the Conservatives were gifted with a whopping majority if none of us is going to live long enough to deal with the consequences. There must be more of these end of the world types than I previously suspected. That would help me understand how it is that so many of us thought endorsing the Conservatives would be a good idea.

Or something. You'll have to forgive me, it's been a hell of a day. I stayed up way too late watching the election results and then stumbled around like a zombie all day. I'm delirious.

I even went across town to an appointment, only to discover that it's on Thursday.

It was a very odd feeling last night to watch the NDP take over 100 seats (the previous high having been 43) and not feel elated. Proud, yes but not elated. I just kept watching the Conservative and NDP numbers rise at the same time and feeling like my head was going to explode.

Those of us who oppose pettiness, meanness and bigotry and who support human rights and democracy (not to put too fine a point on things) have four years to get our act together. 

And I think we need to really start screeching about proportional representation.

Meanwhile, I really am thrilled that my party is going to be the Official Opposition. There is hope for the good guys (thanks, good guys, for working so hard to get yourselves and like-minded folk elected). I'm thankful to all the volunteers, staff and veteran politicians and candidates who worked so hard to make this happen.

And, even if I am slightly hysterical, I'm choosing to repeat the words of one of the surprised, young, brand new MPs from Quebec, "It's going to be all right."

vote early, vote often

I watched last night's English language election debate with interest. I was shocked at how quickly the two hours passed, although this was greatly aided by the fact that I wrote and read a steady stream of commentary on Twitter and Facebook (sorry to my followers and friends who don't give a damn about the Canadian federal election!). It helped me to keep watching without blowing a gasket. I felt like I was at a bar with friends hooting and hollering, except that I was in my basement drinking tea with my son and my spouse (another advantage to Tweeting during the debate was that I had to keep looking down at my Blackberry. This kept the orange decor from searing my retinas and Harper's cold eyes from turning me to stone).

I thought that all the opposition party leaders did well. Duceppe delivered the best opening line ("Congratulations, Mr. Harper, for answering your first question from a citizen during this election campaign.") but petered off  towards the end. It's got to be brutal doing a two-hour debate in one's second language. By and large, I find it a pity that the Bloc only speaks for Quebec, as they are so consistenly solid on most social issues. They lose me, however, when it comes to questions of immigration and multi-culturalism. Nationalism and multiculturalism don't go so well together.

Layton was calm and measured and many people with whom I've spoken found his performance to be much stronger than in previous debates. Personally, I would have liked him to be a bit more aggressive, as he left it to Ignatieff to drive home the points that are near and dear to my heart. Kudos to him for mentioning proportional representation and for this seriously funny (but cheap) line: "I don't know why we need more prisons when the crooks seem so happy in the Senate."

I thought the evening, however, belonged to Ignatieff. He stayed on message (although I found "You shut down what you can't control" to be more effective the first time he said it than the tenth) and was forceful and articulate. He hit all the right notes on all the key issues and challenged Harper on gun control, immigration, crime, health care and transparency. He looked positively Prime Ministerial (my favourite Iggy line of the night, "This isn't bickering Mr. Harper. It's democracy.")

Is any of this going to change my vote? Absolutely not. I remember when the Liberals were in power and they were singing from a different songbook then. Happily, my NDP candidate is an incumbent who has done an excellent job, locally and for the country. I'll vote for Paul Dewar and I won't even have to hold my nose.

But if I lived in a riding where the race was one between the Tories and the Liberals? I just might be voting strategically this time around.

Perhaps none of it will make a difference though. All the pundits who did wrap-up commentary last night seemed to agree that Harper had won the evening. Even my beloved Chantal Hébert was unhesitating in her praise of Harper's performance. Did Canadians watching at home feel the same way? Did undecided voters? Do any undecided voters watch the debates?

I can't recall a time when I have felt as strongly about voting. I keep reading assertions that if all eligible voters under 25 and all women voted, Harper would be out on his ass.

Let's make that happen, shall we?

questions for candidates

From the Canadian Breast Cancer Network: Questions to ask your local candidates during the election campaign

 

Question 1: The Financial Impact of Breast Cancer

  

In May 2010, the Canadian Breast Cancer Network released the research report entitled Breast Cancer: Economic Impact & Labour Force Re-Entry, which firmly positioned breast cancer as an economic as well as a healthcare issue.

  

The economic impact of breast cancer is significant, and in many cases devastating for patients and their families. 80% of respondents experienced an economic impact following their diagnosis, often with distressing long-term financial consequences.

  

Some report findings:

• Average decline in household income was $12,000 or 10% of family income
• 44% of respondents used savings, while 27% took on debt
• One fifth of respondents returned to work before they were ready because of financial pressure
• Those who had chemotherapy had a greater loss of household income and were 49% more likely to take longer than 16 weeks off work

Survey respondents reported that the average duration of their breast cancer treatment was 38 weeks, and two-thirds of the respondents took 16 weeks or more off from work. Because Employment Insurance Sickness Benefits last for a maximum of 15 weeks, there was an average gap of 23 weeks during treatment without coverage.

  

If elected, will your government:

  

A. Lengthen Employment Insurance Sickness Benefits for Canadians undergoing treatment for breast and other cancers as well as other illnesses and chronic diseases that require long periods of treatment so that no one who is ill is penalized by the current limit of 15 weeks of sickness benefits?

  

B. Cancel the two-week waiting period for EI Sickness Benefits so that sick Canadians are not penalized?

  

C. Immediately extend the Employment Insurance Compassionate Care Benefit to cover family caregivers providing care to those with breast cancer, other cancers and other long-term conditions?

a. Increase the benefit to 75% of workers' earnings?

b. Increase the benefit period to a maximum of 52 weeks?

c. Allow partial weeks of compassionate care leave over a longer period?

d. Expand the eligibility criteria beyond imminent death within 26 weeks?

  

Question 2: Drug Approval Process in Canada

  

The drug approval process in Canada is lengthy and complex. Currently the performance targets as outlined on the Health Canada website is 300 days for "non-priority" drugs and 180 days for "priority" drugs.

  

Once drugs are approved by Health Canada, cancer drugs pass through the Pan-Canadian Oncology Drug Review (pCODR), formally the Joint Oncology Drug Review (JODR).This process can take up to a year for recommendation to be made. Provinces and territories may then either confirm or disagree with pCODR's recommendations, often resulting in further significant delays and an uneven patchwork of drug coverage across Canada.

  

Cancer patients in Canada face unduly long waits for much-needed drugs, and medications available in one province or territory may not be available in another. But when it comes to cancer treatment, especially for advanced or metastatic cancer, time is of the essence.

  

If elected, how will your government:

  

A. Ensure that the approval processes for new treatments are shortened to permit timely access to new treatments for those who need them

B. Ensure that no cancer patient in Canada goes without internationally recognized gold standard treatments

  

Question 3: Wait Times 

The Canadian Breast Cancer Network's 2008 Breast Cancer Wait Times in Canada Report Card showed that not all Canadian women are receiving equal access to breast cancer treatment. The project was undertaken in order to gather information about what happens across Canada in terms of wait times in four important areas: from abnormal screen to diagnosis, from diagnosis to surgery, time to radiation, time to chemotherapy.

  

We found some outstanding examples of best practices and much evidence that many jurisdictions across the country are working on innovative solutions to the wait time issue. However, the most disconcerting finding was that there are no national benchmarks for wait times and no standards for wait time reporting systems across the continuum of care. The data reported are calculated differently across jurisdictions making it impossible to compare wait times. This has not changed since 2008.

  

In the absence of comprehensive and consistent wait times data, there is no certainty that people diagnosed with breast cancer are receiving optimal care.

  

This is a complex issue. There needs to be national benchmarks for maximum wait times for diagnosis and treatment. Electronic health records must include consistent reporting of wait times across jurisdiction. Best practices must be shared and implemented across the country. Access to timely cancer care cannot depend upon ones postal code.

  

If elected, how will your government:

  

A) Provide the infrastructure necessary to ensure comprehensive and consistent standards for wait time reporting for breast cancer diagnosis and treatment across Canada

B) Ensure that national benchmarks are established for wait times associated with surgery and chemotherapy

C) Ensure the adoption of electronic health records

  

  

Join our survivor advocate campaign and make canada's decision makers aware of the issues that are important to you. Contact khurley@cbcn.ca for more information on how a little bit of your time can make a big impact.

still ain't satisfied

Yesterday was International Women's Day and I marked it by keeping a therapy appointment and running a bunch of errands for my kids.

In yesterday's paper, Margaret Wente (whose column I avoid like the plague, as it's on the list of things that give me heartburn) wrote a column entitled "For the free, educated and affluent, welcome to the decade of women":

"In the West, International Women’s Day doesn’t mean much any more. It’s little more than a marketing opportunity for businesses, or an excuse for the last remnants of women’s grievance groups to keep griping."

Setting aside the erroneous and offensive assumption that any woman reading the Globe in the western world is "free, educated and affluent", Wente's assertions are just plain untrue.

In "Why International Women's Day Matters", Emma Woolley has written a brilliant rebuttal. Go read it. It will only take a minute and it's very good.

Woolley also posted a video that was circulating yesterday, featuring Daniel Craig and narrated by Dame Judi Dench. I'll share it here as well. It's called Equals and it provides the best rebuttal of all.

On a lighter note, Daniel Craig makes a damned attractive woman and I am crushing on Judi Dench.

contested irrelevance

I'm going to be quoting this brilliant speech given by my friend Andrea today (I'm doing a talk at Carleton University) and I realized that I have never shared it with you here, even though I found it to be deeply inspiring.

Please watch, and go and leave a comment over at We Can Rebuild Her so that Andrea can know the relevance and resonance of her words. It's a welcome reminder that nothing we do to effect positive change in this world is ever irrelevant.



This talk got a standing ovation at PAB 2010. I've watched it several times and it still gives me shivers.

"body, mind, spirit" a national conference for younger women affected by breast cancer

From the Canadian Breast Cancer Network:

Please circulate this to your network members, friends and family, we would love to see them there!

OTTAWA, Oct 1 /CNW/ - Today, October 1, is the start of Breast Cancer Awareness Month and the Canadian Breast Cancer Network and co-presenter Canadian Breast Cancer Foundation will recognize the month with a unique networking event for 400 young women with breast cancer.

The National Conference, called "Body, Mind, Spirit", will offer young women with breast cancer the opportunity to network with others who understand their situation, find out about the latest research directly from some of Canada's bright young researchers, and follow theme sessions on issues everyone with breast cancer is confronted with.

Young women will have the chance to be supported in all aspects of their cancer journey. Theme sessions for the body include healthy living and prevention; for the mind, sessions on chemo brain, self-advocacy, medical research and the latest about breast cancer; for the spirit will touch on everything from Yoga sessions to a chance for a guided walk in a specially constructed Labyrinth for spiritual centering.

Participants can look forward to frank discussion and to be able to question experts about babies after breast cancer, breast reconstruction, what to tell your children about breast cancer and when, and intimacy and sexuality after breast cancer.

A writing workshop and a creative art session will aid self-expression, and book signings and a breast-cancer related art show will give participants a chance to create art, meet authors and to view theme art by people from all over Canada affected by breast cancer. Poster presentations will cover all that is new from breast cancer resources to community support groups. Author and breast cancer husband Mark Silver will interest many with his experiences and encouragement. .

The conference will feature two gala evenings; a "Dinner and a Movie" night presented by Rethink Breast Cancer, a special glimpse of their upcoming BreastFest with Jonna's Body, Please Hold and an appearance by filmmaker and comedian, Jonna who will present her Girl Manifesto - an uproarious look at our kooky notions of body image, defying the Image Police and freeing your inner renegade. Movie night food at a picnic in the park will feature everyone's favorite treats.

The second Gala will feature an Arabian Night with belly dancing, hand kohl painting, a blaze of color, special décor and treats for everyone present, a banquet as only the Hilton Hotel can produce, and special guest Rock Star Bif Naked who will share her breast cancer journey with her story "Rock Your Cancer".

Canada's own beacon of hope Carole Ann Cole, originator of the Comfort Heart symbol worn by hundreds of thousands, will be one of the speakers at an upbeat closing ceremony.

"Body, Mind, Spirit" takes place in Toronto, October 29-31. No registrations will be available on site for this conference, which is expected to sell out to 400 participants. A special hotel conference rate of $129 per night at the downtown Toronto Hilton will only apply to a block of rooms being held until October 8.

Registration is now open through www.cbcn.ca

I attended the first conference organized by the CBCN in 2007. It was an amazing experience. I'll be attending again this November (I am the fortunate recipient of a scholarship). Will you join me?

letter of the day

Yesterday, CBC Radio's Q featured an interview with Samantha King, author of Pink Ribbons Inc.

At the end of the interview, listeners asked the following questions (they were also posted to the Q blog): What are your impressions of cancer fundraising and awareness efforts? Are they working? Do you find any aspect of them troubling?

My sister-in-law, B. alerted me to the interview (she listens on the east coast schedule) and encouraged me to write a letter in response. This morning, a slightly edited version of this letter was read on the air (I was the "Letter of the Day"):

In January 2006, when I was 38 years old an the mother of two young children, I was diagnosed with very aggressive breast cancer. I underwent a brutal treatment regimen only to learn in November of that same year that the cancer had spread to my liver. I was told that I had “years, not decades” to live.

I resumed treatment and, this time, my response was immediate and dramatic – by June 2007, there was no longer any sign of cancer in my body. As I write this, I am still in remission. I'm also still in treatment, as we don't know enough about what happens when metastatic breast cancer disappears to make an informed decision about stopping.

I know without a doubt that I am alive today because of the kind of cutting edge research funded by breast cancer organizations. I also know that thousands of women who've been through breast cancer live better lives because of the kind of advocacy and outreach work that is undertaken by non-profit organizations.

But I do cringe, seethe and yes, even rant every time October comes around and we are deluged with pink products from fried chicken to face cream to key chains.

In theory, I'm not opposed to corporate sponsorship. But in the same way that I think cigarette companies should not be permitted to sponsor children's festivals, I'm offended when companies that sell products that are unhealthy, bad for the environment and laden with carcinogens jump on the “pinxploitation” bandwagon. At best, these campaigns do little to eradicate breast cancer and worst, they are a cynical attempt to grab some good PR and increase profit margins at the expense of anyone who's life has been affected by cancer.

Don't get me wrong. I don't judge anyone who's drawn to all the pink stuff. I own a lovely pink cowboy hat. I would just ask folks to think before they get swept up in the “Pinktober” frenzy. Put that pink soup back on the shelf. Step away from the pink sweater with the pink ribbon buttons (for so many reasons). Unless you really want the pink sunglasses, save your money. Most companies only give a tiny percentage of sales to breast cancer research. Why not make a donation instead to an organization that is demonstrably contributing to research, advocacy and especially prevention of all cancers? Then you'll know that you really are making a difference.

All the letters that the host, Jian Ghomeshi, read were on this subject and all of them opposed pinkwashing. Perhaps tomorrow will bring a deluge of letters taking an opposing opinion but it's good to see that more of us are speaking out on this issue that has driven me wild since my own diagnosis of breast cancer.

Cross-posted to Mothers With Cancer.

i ran for the cure

photo: Ian Hendel

With my sister.

At the finish line.

Wearing my Songbird scarf.

And my hat from Texas.

Team NO PINK FOR PROFIT was 43 members strong. We raised a whopping $25,000.

Sometimes life is very sweet.

my fundraising pitch: run for the cure

Dear Friends and Family,

This year, I am running/walking in the Run for the Cure in support of the Canadian Breast Cancer Foundation and I'm writing to ask if you'd be willing to make a donation.

As you know, this is an issue that is very personal for me. In November 2006, when I was told that my breast cancer had spread to my liver, I knew no one who had survived this kind of diagnosis. Even my oncologist reluctantly told me that I had “years not decades” to live.

But my response to treatment was immediate and dramatic – by June 2007, there was no longer any sign of cancer in my body. As I write this, I am still in remission. I'm also still in treatment, as we don't know enough about what happens when metastatic breast cancer disappears to make an informed decision about stopping.

There is no question in my mind that I am alive today because of the kind of cutting edge research that is funded by the Run for the Cure and the Canadian Breast Cancer Foundation (CBCF).

In November 2007, I attended a conference that was funded my the CBCF for younger women affected by breast cancer. In one of the plenary sessions, I stood up and asked how many women attending the conference were also living with metastasis.

There were dozens of us. For the very first time I internalized the idea that having stage four breast cancer need not be a death sentence. It's not an overstatement to say that moment changed my life.

I support the Run for the Cure because I don't want any woman with breast cancer to feel alone.

I support the Run so that more of us with stage four can go into remission and even walk away from treatment with confidence.

I support the Run so that no woman need ever fear breast cancer again.

And I'm running with Team No Pink for Profit because I hate the corporatization of breast cancer. Our team name makes me feel a little bit subversive. I'm so proud to be the captain of this team comprised more than 30 women and we're the top fundraisers for our region. It gives me great pleasure to see our team name scrolling on the front page of the regional web site.

Can you help by making a donation? Any amount would be appreciated.

You can click on this link to learn more about me and make a donation: http://www.runforthecure.com/site/TR/RunfortheCure/Ontario?px=1268119&pg=personal&fr_id=1101

Thanks so much!

Laurie

speaking to end breast cancer

In 2004, I participated in the Weekend to End Breast Cancer in Toronto.

In 2006, several women participated in Ottawa in my name.

Next week, I'll be speaking at a fundraiser for the same event (now called the Weekend to End Women's Cancers) in Montreal.

Sylvie Grégoire, a two-time breast cancer survivor is organizing the fundraiser luncheon. She was first diagnosed at 38 (the same age that I was at my own diagnosis) and had a local recurrence four years later. She's now, in her words, "healthy and happy!'

This will be the sixth time that Sylvie takes part in this 60 km, two-day event. I am so impressed by this achievement and thrilled to be given the chance to help (I'm also more than a little nervous. I need to speak for around thirty minutes. The thought is a little daunting).

You can contribute as well by making a donation. This is the link to Sylvie's personal page on the Weekend to End Women's Cancers web site.

And, experienced speakers out there, how many words is a thirty minute speech? Mr. Google is offering conflicting advice.

a lapse in judgment

In the last couple of weeks, I have received two emails from Rethink Breast Cancer, an advocacy organization aimed at younger women. The messages urged me to by tickets for the Rethink Romp, a Toronto fundraiser and party.

I like a party as much the next girl and the idea of a superhero themed party made me smile. I love superheroes.

I eagerly clicked through to check out the "Shazamer", an interactive site where I could make my own superhero. At that point, the fun came to a screaming halt, as I read the words: "Show of your six packs and your great racks in support of Rethink Breast Cancer".

It's a great site, with some really cool interactive features but the model is built like Barbie and the "Superheroes" title bears the sub-head "with a great rack comes great responsibility."

The idea that a group of diverse, smart breast cancer advocates sat around a table and decided that this was a good idea is just inconceivable to me. Even more shocking is that this idea went from that table to a high profile, glossy campaign without someone shouting, "Hey wait a minute! Don't you all think this is a little insensitive?"

Yesterday, I sent Rethink this brief email:

Has no one complained to you about this?

A breast cancer organization talking about "great racks"? What if you only have half a rack or none at all? Can I still be a superhero if I'm not white [I did discover after I sent the note, that you can change the skin colour of the model, once you get inside the game but both the male and female superhero start as fair and light-haired] , with big boobs and able-bodied?

I love the idea and I love the spirit of fun and celebration to which you are clearly aspiring. I just don't understand how a group of breast cancer advocates sat down together and agreed that this is the best imagery and wording for this event.

So disappointed.

I haven't heard back yet. Rethink Breast Cancer has a great mandate and does good work. I love the spirit of fun they try and inject into their work. With this campaign, though, the organization has displayed a serious error in judgment.

super me
a one-breasted warrior
with really great boots
a rhea belle top
and some seriously funky accessories (thanks to Babz for that suggestion)
generous hips (the better to shoot from)
crows feet
and smile lines
honest
smart
strong
and always compassionate
but ready to kick ass
when she needs to.

just what i needed

I was feeling a little sad and frustrated this morning (no bad news and no crisis just some things that made me feel, well, sad and frustrated).

Then I saw this video that my friend H. posted to Facebook and I laughed, smiled and sang along. It made me feel hopeful, too.




Then, via this post on BlogHer, I discovered Regretsy.

Have you heard of Etsy? It's a great web site where crafters and artists of all kinds can sell their wares. I love Etsy and have spent many hours checking out its contents. I've also bought many wonderful things.

However, the vendors are not adjudicated. This means that goods posted to Etsy can be, a little uneven in quality - sometimes a little (or a lot weird) and sometimes just plain atrocious.

Regretsy brings together the best of the worst of these (the site's motto is "Where DYI meets WTF") and, combined with biting commentary, the results are hilarious. I lost myself on the site this morning, laughing until my sides hurt and tears streamed down my face.

Check the left sidebar for categories. I've only viewed a fraction of what they've put together but some of my favourites include the Bubble Scarf in Chocolate Brown, Watercolour Print Cat Art, this tree trunk thing that poops candy (I'm sorry, I'm unduly amused by the scatological), the bridal veil for dogs (mostly because of the commentary, which could have been written by my spouse) and especially the chicken poncho (that's a poncho for a chicken not a poncho with chickens on it and it helped me feel much better about my recent penchant for knitting dish cloths).

I'm embarassed to say how much time I've spent looking at this stuff today.

Time to go do something constructive.

My face hurts from laughing.

thank goodness someone's brain is working

I've been staying  up way too late and drinking too much coffee to compensate. Then I have trouble sleeping. It's a bit of a vicious circle.

As a result, I seem to be having problems jump-starting my brain.

The items in this post have no real connection, except that I found them on the internet and they were all drawn to my attention by local bloggers.

Zoom wrote about this lost cat. Is she yours? If her owners aren't found, do you have room in your home for this sweet girl? She's been taken in (and cared for) by the Crazy Cat Lady but she needs a forever home.

Nat got my blood boiling with this righteous rant (on why she won't "shut the fuck up") and made me laugh with this piece on Ottawa's ant plague (I feel so much better knowing thaat I'm not alone) and cry with her link to this amazing story about how a city helped a boy with cancer become a superhero for a day.

I don't know what I'd do without my virtual friends.

stepping in the right direction

On the Saturday evening of the 10th Annual Conference For Young Women Affected By Breast Cancer, a group of participants went out for dinner.

Many of us had not met before that evening. We came from Texas, California, Massachussetts and Georgia. I was the lone Canadian. It was a truly lovely evening. The food was great and the conversation flowed - from the trivial to subjects of greater import, from the general to the intensely personal.

About half-way through dinner, the subject of health care reform was raised. I said that, as a Canadian, I couldn't understand why anyone would oppose universal health care, especially anyone who has had a life-threatening illness.

Most around the table agreed with me, while one woman stated that she was resistant to any more government interference in people's lives. I soon found myself addressing the pervading myths about our health care system and was asked whether it was true that Canadians were cut off from health care when we turn 75.

I said, "No, that's not true and we don't have death panels, either."

The conversation was very respectful and never tense (unlike many, many other debates on this issue) and soon we moved on to other subjects.

And today, I want to congratulate my American friends for ignoring the fear-mongering and taking a significant step towards greater access to health care.

how cool is this?

Yesterday morning, I got a call from Oresta. She told me that she had read my article in the Centretown Buzz and wanted to reach out to me.

Even though I love her store and spa (I asked for gift certificates for Christmas last year), I was not on her mailing list and had not received the letter that I posted above.

It's hard to read, so here is the text, in full:

OCTOBER is BREAST CANCER AWARENESS MONTH

Pinkwasher: (pink’-wah-sher) noun. A company that pur-
ports to care about breast cancer by promoting a pink
ribboned product, but manufactures products that are
linked to the disease.

Dear clients,

ORESTA organic skin care confectionery is committed to providing organic spa
treatments and to supporting companies that manufacture truly pure and organic
products. We believe in beauty without compromising your health.

We have been touched by cancer in our families and with our clientele - as
cancer survivors and undergoing cancer therapy. The prevailing comment of clients
who have come in for a spa treatment while undergoing therapy was how nurturing a
visit to ORESTA organic skin care confectionery was for them.

We have wanted to help the cause but have struggled with a way to do this.
Do we donate a % of sales? a % of services? Do we fundraise? For which organiza-
tion or foundation? In the end, what feels right for us, is doing what we do best:
pampering.

If you, a friend or loved one is undergoing cancer therapy and would enjoy an
organic facial treatment, please contact us. We are committed to treating one
woman per week to a complimentary ORESTA treatment.

Oresta was calling to offer me a facial (I am going on Friday) but I offered to blog about this offer. She asked me to clarify that she and her staff will be offering this service to women undergoing treatment throughout the year - not just during October.

I am impressed and touched beyong words. Have any of you ever heard of anyone else doing this?

I told my spouse that, by coincidence, I had written in journal that morning that I would really like a facial. He said, "Tomorrow, could you write that you would really like a home renovation?"

de-bunking the pink

"Three years ago, I saw a story on the news while I was at the gym. An investigative feature on the breast cancer awareness contributions that various corporations pledged during Breast Cancer Awareness Month found that most of these promotions led to increased sales and windfall profits that dwarfed the piddling donations that the extra sales generated. Until that moment, I was gung-ho about buying products marked with pink ribbons."

And so begins the best article I have ever read on the subject of the pink-washing of October (and not just because the author says you should all go out and buy my book). Suzanne Reisman hits all the bases in this piece and does it with eloquence and a sense of humour.

If you have ever struggled to understand why some of us object to pinxploitation (I just made that word up), your questions will be answered.

"what's wrong with breast cancer awareness month?"

"October is breast cancer awareness month, which again fills the stores with pink products and pink ribbons. But many people with breast cancer are feeling exploited."

It's only September 30th and I already have pink ribbon fatigue. I ranted about about this in 2006, 2007 and 2008 (there is also a version of this rant in my book, Not Done Yet).

This year, let me point you to an excellent article by Maija Haavisto (and I don't just say this because she quotes me):

Since 1985 October has been celebrated as breast cancer awareness month, often symbolized by pink ribbons and the color pink. It is interesting to note that the awareness month was started by the drug company AstraZeneca (which manufactures several breast cancer drugs) and the pink ribbon originated from cosmetics giant Estée Lauder.

Simply put, I think a lot of breast cancer awareness month is big scam. To quote Maija's article quoting me (is this as po-mo as it gets?):

"I really resent big corporations making a profit - while donating only a tiny percentage to breast cancer research - on some disposable item that has been made under questionable environmental conditions by workers who are paid less than a living wage."

Want to do something to raise breast cancer awareness? Make a donation to an organization doing good work. Advocate for changes in environmental laws. Encourage young people to be aware of changes in their bodies. Do something nice for someone who has been affected by the disease.

And if you are craving a slice of pink cake, washed down with a glass of pink lemonade, by all means, indulge yourself. Just please don't do it in my name.

some further and disjointed thoughts on my blogher09 experience

A non-virtual connection with Melissa from Stirrup Queens (and author of "Navigating the Land of If"). We are both holding Nora's head on a stick.

1. If Twitter was played a role at last year's BlogHer conference, this year it was front and centre.
Many of us followed what was happening in other sessions we attended by following the keyword (called a hashtag with a #sign) blogher#09. These are my tweets from the session I attended about "Online Safety for Your Kids Who Are Online Themselves" (I had expressed in my previous post the concern that it would be all about scaremongering but was delighted to find that it was not):

"if you are an engaged parent you have less to worry about in terms of sexual predation online" #blogher09 session on online kids.

it never occurred to me to worry about kids taking pics at my son's sleepover b-day party. should i have? #blogher09 kids online session.

"every technology brings with it new fears." the take away - don't panic! i love it. panel on kids online #blogher09 do you post photos of your kids online? on facebook? flickr? #blogher09

"identifying information that your kids put online has NO correlation with sexual predation." #blogher09

"reputation management" never heard this before in online context. interesting. #blogher09. your photos and words may come back on you, kids

"we are tethering our kids" "we are raising our kids in captivity" - this is the way times have changed. #blogher09.

2. In the closing keynote, the subject came around again, to Twitter. One commenter likened her Twitter community to a support group "I think the women I've met online in the pregnancy loss community have saved my life" (I didn't get her name or blog. Let me know if you did). A powerful statement, but I can relate. She went on to say that support groups are not available 24/7 the way that an online community can be.

3. One of the speakers also observed that most people get started blogging because of someone they know in their "physical life." I thought that was interesting, because it was my spouse (a non-blogger) who introduced me to the blogosphere.

4. Another favourite keynote comment (again, if you know who said this, do let me know): "People with higher levels of income tend to be online. We need to be vigilant that our online communities are not recreating or reinforcing existing inequities."

5. As you can see, I found the content to be very rich and thought provoking this year, despite the size of the conference.

6. I do worry that some people spent so much time tweeting that they missed connections with real people or taking in the discussions occurring around them.

7. One of my favourite Twitter moments occurred when "phdinparenting" lamented her dislike for American beer. She posted about our interaction on BlogHer. It really tickled me that I could be of help. There were lots of those kinds of tweets, throughout the conference.

8. I wish the bookstore had been in a different location. One person suggested in a conference feedback thread that the bookstore would do better closer to registration. I suggested that book signings take place during cocktail parties, in the middle of the action (and of course it wouldn't hurt if free cocktails made people want to buy more books). The conference organizers have acknowledged that the placement of the bookstore in the far corner of the Expo hall was a mistake (too far out of the way. And who wants to buy a book when they are surrounded by mounds of free stuff?). While I do understand how experiments can fail (and how it must have seemed like a good idea during planning) I just wish that this particular year (when I schlepped a bunch of books in my suitcase) had not been the one where the bookstore flopped.

9. Elisa from BlogHer made an observation (in a tweet, of course), that she is trying to learn the distinction between things that are "wrong" and things that are just not her "cuppa tea." That's how I feel about the karaoke during the Friday night cocktail party. I hated it. However, others seemed to be having fun (perhaps I am just getting old), so I got myself a hot date and went to find a patio.



10. I have other thoughts but Sassymonkey and Blondie expressed them already. Go read their posts.

I said many times before going that BlogHer09 would be my last. I hadn't even unpacked my suitcase before I'd begun to fantasize about getting to BlogHer10 in NYC. Anyone want to drive down from Ottawa and share a hotel room with me?

isn't this lovely?

I'm still feeling crappy, so I thought I would share something that really makes me smile.

I met Claudia at the 2009 Conference for Young Women Affected By Breast Cancer. Every time I saw her, she was wearing a very different and very funky hat.

This one, made from coffee filters was one of my favourites:




When Claudia was diagnosed with breast cancer, she launched the She Arts Project: "a collaboration with 30+ Artists with photographs from Meg Luther Lindholm."

The photographs eventually became part of an travelling exhibit. You can see more of them here.

I love this kind of thing.

"not done yet" reviewed at "mothers with cancer"

Mary Beth Volpini kindly agreed to review my book for our group blog, Mothers With Cancer:

There were entries that I laughed while reading… Monday, July 3, 2006 as her boys pretended to be Wolverine. The most touching entry to me… Wednesday, October 10, 2007 Etching Myself in their Memories … spontaneous tears ran down my cheeks right there in the hair salon. I share those same haunting thoughts.

I am glad that I had the chance to learn more about Laurie. I applaud her courage, her creativity and her approach to life. “Metastatic cancer has not ended my life; it has just caused me to live my life differently.” If my story becomes more similar to Laurie’s, I hope I proceed with the same courage and positive outlook.

You can read the rest of the review here.

Mary Beth is an artist and you can see some of her work, at her personal blog.